Sunday, March 1, 2009
What is everyday life like? What is the quality of life
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People with Huntington's Disease(HD) go to general practitioners for their day-to-day medical needs. They usually have regular meetings with a specialist, such as a neurologist or a psychiatrist. A person with HD can slow down the effects of HD by staying active and doing activities such as walking, reading, going to the football or a movie, or having coffee with friends. People with HD usually have problems with organization and getting things started so a caregiver can help by kick-starting activities for the individual. As the disease progresses the individual will become more impaired because of the increased nerve cell damage. They will find it much more difficult to move around and will become more forgetfull and in need of care. In the final stage of the disease the individual will become very impaired and will essentially be in the full care of the caregiver.
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