Buns

Sources used for these blogs

"Huntington's Disease." Medicine Net. Feb. 2009 http://www.medicinenet.com/huntington_disease/article.htm.



"Prevalence and Incidence of Huntington's Disease." Wrong Diagnosis. Feb. 2009 http://www.wrongdiagnosis.com/h/huntingtons_disease/prevalence.htm.



"Huntington's Diseaes." Mayo Clinic. Feb. 2009 http://www.mayoclinic.com/health/huntingtons-disease/DS00401/DSECTION=symptoms.



There is HOPE for a cure..." Cure HD. 7 Mar. 2009 http://www.curehd.org/cure.htm.

Pictures of Huntington's Disease

Person disabled by Huntington's Disease


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Artistic rendering of a broken DNA helix emanating from a mouse nerve cell.
www.sciencedaily.com/.../04/070422141755.htm

How possible is it that a cure will be found?

Scientists are looking at two possilbe ways to cure HD. The first is to find out how the brain cells die. Once they do this they believe they can block or neutralize the rogue protein created by the defective gene. Most research is being done on this level since the second possible cure builds on this idea. THe second idea is to find a way to rescue the dying cells.

What are some organizations that can help a family cope with an individual's disorder?

Huntington's Disease Society of America:http://www.hdsa.org/
Huntington Society of Canada:http://www.hsc-ca.org/
International Huntingtons Association:http://www.huntington-assoc.com/
The Hereditary Disease Foundationhttp://www.hdfoundation.org/home.php

For other links, go to the Huntington's Disease Advocacy Center's website: http://www.hdac.org/links/

What limitations does the person have?

For a first hand article of a person living with Huntington's Disease click on the following link: http://www.hdac.org/features/article.php?p_articleNumber=70. As HD progresses the individual will become clumsier and clumsier and will bump in to many things, even around the house. The affected individual will no longer be able to drive and will have to rely much more on friends and family. However, he/she should still stay active and try to live a normal life to slow down the effects of the disease.

What is everyday life like? What is the quality of life

If clicking on the chart doesnt work then click on this link:http://www.promotingexcellence.org/i4a/pages/Index.cfm?pageID=3696
People with Huntington's Disease(HD) go to general practitioners for their day-to-day medical needs. They usually have regular meetings with a specialist, such as a neurologist or a psychiatrist. A person with HD can slow down the effects of HD by staying active and doing activities such as walking, reading, going to the football or a movie, or having coffee with friends. People with HD usually have problems with organization and getting things started so a caregiver can help by kick-starting activities for the individual. As the disease progresses the individual will become more impaired because of the increased nerve cell damage. They will find it much more difficult to move around and will become more forgetfull and in need of care. In the final stage of the disease the individual will become very impaired and will essentially be in the full care of the caregiver.